7:43 PM -
Posted by PinkLady -
Jax got a ton of tests done recently. He got a bone scan and it showed that his bones are 5-6 months behind where they are suppose to be. Also developmentally he is only about 8 or 9 months old. He will be 2 in august. He has made some huge strides tho. He walks while holding on to something and his crawl is getting alot better. His developmentalist wants everyone who interacts with him to learn sign language and teach him it. The docs do not know when he will start talking. He has an individualized family service plan tomo so hopefully something will be worked out so he is better accomadated.
I am so sick of peoples shit on facebook and acting rude to me in general. So to kinda stay out of the drama i started a new facebook page with a fake name Paisley Rose Catrell and if u are reading this then u are prob a good friend so friend request me if u want. But i am keeping my friends to a limited list. Probably less then 20.
I am all done my spring semester and all in all it went well. I only recieved two grades back so far. I got B's in both my ethics and overview of A&P class. I am still waiting for grades in math and nutrition. I am taking summer classes which start in 2 weeks. I am taking General bio witha lab, western civilization 1715 to present, abnormal psychology and psychology across the lifespan. I really enjoy school it keeps me busy. I have about 2 yrs left YAY!!! On my two weeks off from school i am volunteering at Waban...it is pretty easy and i really enjoy working with people.
This weekend i am super busy...fri i am going out with a bunh of friends then sat i am going to a wedding then the reception, then after i get home with going to a sex toy party or to a singles dance not sure which one yet.
5:59 PM -
Posted by PinkLady -
Today Jax had an appointment with the allergist. He was tested for about 50 different things and he tested negative for all of them. Which is awesome one less thing for me to worry about. Tomorrow he has an appointment with the geneticist. I don't think we are going to learn anything new there but its worth going just to see if they do say anything different. Also today i got a letter from the Aerodigestive clinic which is a place that he an go to get his blood checked,a swallow eval, and upper GI looked at. The app isn't until the end of April but its better then 6 months from now. I filled out papers for Jax to go see the Develop mentalist so i am hoping he gets an app soon. Because he still isn't walking yet and he isn't saying words just babbling. He starts Waban next Monday. I think that him going there is going to be really good for him.
Skylar is still taking Melatonin to go to sleep but she has been on it almost 3 months and i think its losing its affect. Although she may not be getting a good night sleep because she just got a new palette expanding retainer and its really hurting her. She goes back in a few weeks to get the bottom one and i am not looking forward to it. Then at some point i have to meet with her dentist, he said that she will need to have teeth removed to make room for others. Her mouth is very narrow and her teeth are very big. So it doesn't make for a good mix.But it will be worth it in the end because she will have beautiful straight teeth.
So I thought i was doing bad in school but yesterday i took a math quiz and an ethics quiz and i got a 80 on the math one and an 87 on the ethics. Then today i took a nutrition quiz and a&p and i got a 90 on both. So i guess i am doing better then i thought and we don't have that much longer till the semester is over about a month and a half.
6:13 PM -
Posted by PinkLady -
Lately i have been to busy to post. Jaxson has had a lot of appointments. He has gone to the Ear Nose and Throat visit. They think he may have microaspiration, which is where there is a hole in his epiglottis and anything that goes down his throat can go down the wrong tube and end up in his lungs. Which would be the reason why he always has breathing issues and is always sick. He is suppose to be getting a swallow eval in a few weeks so then we will find out for sure if he does have miroaspiration. We had to go the Allergist, we didn't really find out anything except that he had to get blood taken and that we have to go back in two weeks to find out results. He got moved in to the next level room at his daycare the Butterfly room. He seems so much younger then the rest of the kids in that room. They are all talking and walking and Jax isn't even walking yet. I am glad he is in the next room but kind of worried that he will either get trampled or left behind. I am suppose to hear from this place called the University of Southern Maine for community Inclusion, a place that helps kids with disabilities. They are suppose to be getting Jax a one on one so that he will have some one with him thru out the day. That would make me feel better so i know that he wouldn't get left behind.
Skylar is still doing really good with Melatonin and i hope she continues to do well. Because she is getting a good night sleep it has greatly effected all aspects of her life. She is overall a happier sweeter litter girl.
I started recycling am so proud of myself. I am also gonna be starting a compost bucket in my kitchen because in the spring i am gonna be starting a garden with a little help from my sis.
I am watching a show about how bacon is made and i am really starting to think i want to be a vegetarian again it is so gross. Bacon is made out of PORK BELLY EWWW!! i dont think i want to know what is in hot dogs or pepperoni.
Actually speaking of food i made the best food the past few days. Homemade bison mozzarella pizza,scrambled bison and mini onions and flaky biscuits, cinnamon roll muffins with cream cheese icing with chopped walnuts and tomo i am making scallops with coconut cream marinade wild rice and fresh green beans.
5:23 PM -
Posted by PinkLady -
So i got some money and decided i wanted to decorate my house. I went to TJMaxx,Walmart,and Marshalls. I got cushions for the futon,a red rug for the living room,a comforter cover for my room and a bunch of really cute decorative pillows,a eiffel tower metal pic and a eiffel tower figurine. I love shopping and had alot of fun doing it. Tomo my friend is coming and we are going to finish decorating the living room/dining room.
6:03 PM -
Posted by PinkLady -
I am super excited!!! Why u ask?? because i have all next week off from school and i desperately need it. Skylar will be at her dads house all week. This will give me a chance to catch up on sleep and homework. I plan on sleeping till at least 930 every morning.
So after many many appointments and tests and opinions. The majority of the professionals that have seen Jaxson think he has autism. He does not have a official diagnosis because they can not officially diagnose someone with autism till they are 3 years old.He is seeing a physical therapist once a week, oral therapist,and now because he isn't gaining weight he has to see a nutritionist.
He has issues with hot/cold and textures so if he doesn't like it he doesn't eat it. I talked to the doc about that today and she suggested that i substitute 2 of his bottles a day with vanilla instant breakfast.He has a weight check in a month i want him to gain at least 2-3 pounds if not more.
Skylar received the Terrific kids award. I am so proud of her she is finally doing good in school and she loves school. I'm so glad cause she has a lot more school years left to go.
9:41 PM -
Posted by PinkLady -
I found out yesterday that Jaxsons MRI came back completely normal. I am so glad that it didnt show anything. They still think he has autism tho. But they can not properly diagnose that till he is about 3. I def think he is autistic. He has autistic characteristics such as hand flapping,unusual vocal noises, developmental delays.Thats about it so far.
Well its really late so i am going to bed i will write a longer one tomo
3:08 PM -
Posted by PinkLady -
I am still waiting for Jaxsons MRI results. I hope they will be in my Fri. I am so impatient espcially when it comes to things likthat involve my children and their health. I dont wanna wait longer then i have to. I hope the results come back good and if they dont i hope it is something easily taken care of.
I have another speech tommrow.This time we have a chance to prepare for it. Last time my teacher gave us a card with something random on it and we had a few minutes to think of something then speak about it. I hate those kinds of speeches. He said we have another one of those coming up. I am not sure when but i hope its in a few weeks.
So i start a parenting class tomo night. I am super excited for it!!! Its 3 hours long for then next 1o weeks and i guess we go over everything from feelings to stress management. We get dinner when we arrive then we break off into groups Sky will go in her own group with the 5-8 yr olds and Jax will be in the nursery because he is to little. I really hope we get some useful advice.